Monday, March 9, 2015


Rare Disease Day 2015 really got me thinking.  Thinking about rare diseases like OI.  Thinking about awareness and what it means.  

What does it mean?

To me, it means knowledge.  With it comes love, respect, compassion, and understanding.

I believe that if a person knows the basics of something, they can see past what others see as "different".  

I know that the majority of the readers of my blog see Isaiah.  Sometimes you may see his OI, but thanks to your understanding of OI, you see beyond it.  You see his smile.  You see the sparkle in his eyes.  You see what he can do.

But is there more you want to know about OI?  About Isaiah?  About us?  

Wishbone Day 2015 is coming.  If you are new to the blog, Wishbone Day is celebrated in the OI community on May 6th each year.  It's a day of awareness of Osteogenesis Imperfecta and all you have to do is wear yellow and spread awareness of OI.  This year it is on a Wednesday, right smack in the middle of OI Awareness Week.  

During OI Awareness Week, I am planning to do a little Q&A series called OI Want to Know.  Do you have questions about what it's like to care for a child with severe OI?  I want to answer them and any other question you may have and basically nothing is off limits...OI, motherhood, my emotions, our family life, etc.

If you have a question, feel free to leave a comment on this post, email me, or send a message to Isaiah's Facebook Page.

I look forward to posting the answers to your questions during OI Awareness Week. :)

In the meantime, if you are interested in purchasing an Isaiah shirt, please let me know by March 18th.  Find out all the details here. :)

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