Wednesday, March 12, 2014

Do You Have Your Yellow Yet?

We're counting down to Wishbone Day in this house!  Only 8 weeks to go!

A year ago at this time we had no idea what Osteogenesis Imperfecta was or that Wishbone Day was the International Day of Awareness for it.  Thanks to Isaiah, along with some wonderful OI families and the oh so helpful, we learned about OI and Wishbone Day.  It was like a whirlwind at the time, we found out about Isaiah possibly having OI, shared the news with friends and family, and asked those on Facebook to wear yellow on May 6.

Our facebook friends and family answered our request and showed their support.

Wishbone Day celebrates those living with OI and raises awareness of this lifelong disease. It also shows the world that those living with it live BRIGHT (helloooo yellow) and wonderfully HAPPY lives.


This year on May 6th, Isaiah's first Wishbone Day, we will be celebrating at the state Capitol of Pennsylvania!  Thanks to my friend Fallon, a resolution will be declared (if it gets adopted; the senators have to vote on it) to make Wishbone Day an official day in the state of Pennsylvania.

Not too shabby for Isaiah's first Wishbone Day, huh?

We'll again be asking our friends and family to wear yellow.  We're also writing a letter that we'll deliver to our neighbors in April telling them all about OI.

Besides what we're doing ourselves, I have a friend spreading awareness in her play group.  They're having a yellow party!  (Party?! I like the way they think.)  I look forward to seeing pictures of all of those little cuties spreading awareness in their yellow.

I'm looking forward to seeing your pictures too! When Wishbone Day gets closer, I'll be requesting pictures of YOU sporting your yellow in support of Isaiah and all those living with OI.  I'll be challenging you to tell at least one person why you're wearing yellow on May 6th.

If you've been inspired do something extra for Wishbone Day, please share it with us! We'd love to know what you're up to in order to spread awareness.  Comment below or email us at (That's right, Isaiah already has his own email address.  He can even take his own selfies already, too...)

(Yes, he really did take this picture. And it cracks me up every time I see it.)

On the weaning front, we're trucking along.  Today starts 2 hour weans and then Isaiah will be tube-free during waking hours all weekend (and beyond? yes please!).  He's sustained oxygen levels of 97% and higher during his weans, his heart rate stays completely normal, and so does his respiratory rate (we have to count that one ourselves).  Super Isaiah!

We'll continue to keep you updated on Isaiah losing the tubes and tapes. (Go baby go!)

PS- It must have been the shot bugging his leg yesterday, that or a pooping problem (you're welcome), because he's been dancing all morning! :)


  1. WOW...I don't know what to write. I am just a stranger who lives in Philadelphia but I'm so moved by your strength, candor, and love for precious Isaiah. I will pray and pray for Isaiah and for you and your husband and hope that our paths will cross. But in the meantime, please know that you have touched my life, and countless others.

  2. We have our yellow! Origami Owl just came out with a wishbone charm. I actually wear wishbone earrings every day in my third hole. On Wishbone Day, me & the kids will be sporting yellow and I'll wear my locket with the following charms:

    Yellow Sun:
    Yellow stone:

    Here's my locket: