Friday, August 30, 2013

It's Labor Day Weekend?

Who knew? Not us. Days spent in a hospital seem to really blend together.  Hopefully the end is in sight!  Tuesday? Wednesday?

Although, the break at home won't be all that long.  I spoke in detail with Dr. Bober today and met Dr. Katz.  Dr. Katz is a surgeon who will be performing Isaiah's first surgery.  His first surgery will take place the day before his next PAM treatment.  It's necessary to put a central line in for his PAM treatments.  When he's big enough, he'll switch to a port which will be useful until he's about 5 years old.  Until then, the central line will help Isaiah avoid more scalp IVs and yucky stuff like that.

Scalp IV? I don't want no stinkin' scalp IV; it would mess up my cool mohawk.

It turns out Isaiah will be back in the NICU after the surgery and he'll probably remain there that day and for the 3 days of PAM treatments.  This actually makes me feel better since we know/love the staff and they know Isaiah.  If all goes well, he'll be discharged (again) after that last day of treatment.  We're hoping to coordinate his next hearing screening for that week as well.

Other than that, we're having a quiet day together. Dave is handling his commissioner duties while I am practicing one on one time with Isaiah (with bonus help from his nurse when needed).

I've changed his diaper a number of times, given him his meds, read him a book, sung along with Pandora, and even considered changing his clothes....but I'll save that for the morning. :)

Oh and I even got him to eat a little from the bottle! (Progress)

I am pretty sure I've exhausted him.

That's ok...because he's exhausted me too. Happy Labor Day Weekend, all! I hope you're able to enjoy it!